Assessment of activities and participation of people by rehabilitation-focused clinical registries: a systematic scoping review

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datacite.alternateIdentifier.citationEUROPEAN JOURNAL OF PHYSICAL AND REHABILITATION MEDICINE,Vol.59,640-652,2023
datacite.alternateIdentifier.doi10.23736/S1973-9087.23.07895-4
datacite.creatorGutierrez Arias, Ruvistay
datacite.creatorNeculhueque Zapata, Ximena
datacite.creatorValenzuela Suazo, Rail
datacite.creatorOliveros, Maria Jose
datacite.creatorMorales, Camilo
datacite.creatorVasquez, Luis
datacite.creatorJalil, Yorschua
datacite.creatorMarzuca Nassr, Gabriel N.
datacite.creatorQuiroz, Jacqueline L. Inostroza
datacite.creatorFuentes Aspe, Rocio
datacite.creatorSolano, Ricardo
datacite.creatorSalgado Maldonado, Gabriel
datacite.creatorAguilera Eguia, Rail
datacite.creatorAguila Villanueva, Camilo
datacite.creatorGarces Burgos, Carolina
datacite.creatorSeron, Pamela
datacite.date2023
datacite.subject.englishInternational Classification of Functioning
datacite.subject.englishDisability and Health
datacite.subject.englishRehabilitation
datacite.subject.englishRegistries
datacite.titleAssessment of activities and participation of people by rehabilitation-focused clinical registries: a systematic scoping review
dc.date.accessioned2024-05-27T18:27:49Z
dc.date.available2024-05-27T18:27:49Z
dc.description.abstractINTRODUCTION: Rehabilitation is considered a key intervention in health care. Clinical registries, defined as an organized system that uses observational methods to collect information to assess specific outcomes in a defined population, can contribute to assessing the impact of the rehabilitation intervention. This review aims to identify and describe rehabilitation-specific registry systems with an emphasis on identifying outcomes that enable the assessment of vital areas and activities of daily living.EVIDENCE ACQUISITION: A systematic scoping review was conducted. A systematic search was conducted up to August 2022 in MEDLINE/ PubMed, Embase, Cochrane Library, Epistemonikos, and other search resources. Studies related to rehabilitation registries presented data on people with health problems that could limit their functioning were selected. The inclusion of studies/clinical registries was not limited by methodological design, year of publication, country, or language. The unit of analysis was rehabilitation registries. The measurement instruments used to assess the outcomes were explored to estimate the domain assessed from the vital areas related to functioning and disability as described by the International Classification of Functioning, Disability and Health (ICF). The vital areas were classified according to activities of daily living (ADLs).EVIDENCE SYNTHESIS: Seventy-one registries in rehabilitation were identified. The registries included a median of 3 (IQR 2-5) assessment instruments designed to assess the impact of different rehabilitation programs. In total, 137 different assessment scales or instruments were identified. Each rehabilitation registry assessed 6 (IQR 2-8) domains of the ICF, and 15.4% of registries assessed all domains. The most assessed domain was 'Mobility' (89.7%), and the least assessed was 'General Tasks and Demands' (25.6%). In addition, 92.3% of rehabilitation registries assessed basic ADLs, 76.9% advanced ADLs, and 71.8% instrumental ADLs. CONCLUSIONS: Although clinical registries do not claim to directly assess the impact of rehabilitation programs on people's functioning ac-cording to the ICF framework, it was identified that a low percentage of them assessed the nine vital areas through different outcome assessment instruments. However, most rehabilitation registries directly or indirectly assess some basic, instrumental, and advanced ADLs. The findings of this review highlight the need to improve the design of clinical registries focused on assessing the impact of rehabilitation programs to assess people in all areas of their lives.
dc.identifier.urihttps://repositoriodigital.uct.cl/handle/10925/5834
dc.language.isoen
dc.publisherEDIZIONI MINERVA MEDICA
dc.sourceEUROPEAN JOURNAL OF PHYSICAL AND REHABILITATION MEDICINE
oaire.resourceTypeReview
uct.indizacionSCI
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