EXPERIENCES OF FAMILIES WITH A SON WITH DOWN SYNDROME OF TEMUCO, CHILE

dc.contributor.authorBilleke, Claudia Huaiquian
dc.contributor.authorArrepol Riquelme, Marjorie Aracelli
dc.contributor.authorSalazar Alvarez, Michelle Alexya
dc.contributor.authorSalgado Candia, Isabella Alejandra
dc.date2019
dc.date.accessioned2021-04-30T16:25:24Z
dc.date.available2021-04-30T16:25:24Z
dc.description.abstractConsidering that the experiences are the indivisible unit between the personal and situational characteristics that people experience, the purpose of this research is to describe the experiences of families that have children with Down syndrome. The design is descriptive qualitative, and was oriented from the multiple case study design, with semi-structured and in-depth interviews. The research analysis plan is implemented from the grounded theory, constant comparative method and theoretical sampling, making an open and axial coding that allows the generation of theories, through the software atlas.ti version 7.0. It was concluded that the experiences of families with a child with Down syndrome are constituted by outstanding moments in family life, such as birth, family mourning and upbringing. Families in the process of coping, acceptance and upbringing of the child with Down Syndrome manage to order their hearts according to intransable values and transcendents such as love, respect and honesty. In relation to this, the mothers are the ones who present a work postponement, related to the greater time that they must dedicate to the upbringing of the child with Down Syndrome, as opposed to one that does not have it. Finally, it was empirically confirmed that society as a whole is not prepared to live with valuable people, such as those with Down syndrome, since intellectual value prevails and this opinion of others affects the acceptance of the child by part of the parents.
dc.identifier.citationREVISTA INCLUSIONES,Vol.6,43-60,2019
dc.identifier.urihttp://repositoriodigital.uct.cl/handle/10925/2509
dc.language.isoes
dc.publisherEDITORIAL CUADERNOS SOFIA
dc.sourceREVISTA INCLUSIONES
dc.subject.englishFamily
dc.subject.englishBirth
dc.subject.englishQualitative research
dc.subject.englishExperiences
dc.subject.englishDown Syndrome
dc.subject.englishValues
dc.titleEXPERIENCES OF FAMILIES WITH A SON WITH DOWN SYNDROME OF TEMUCO, CHILE
dc.typeArticle
uct.catalogadorWOS
uct.indizacionESCI
Files